Nomi

In late 2025, our mom was diagnosed with Trigeminal Neuralgia — a condition often described as the most painful known to medicine. Electric, stabbing facial pain triggered by the smallest things: a breeze, a bite of food, a word spoken too loudly.

For over a year, she lived in a fog of pain so severe she was nearly bedridden. We watched the woman we knew slip away — lost to appointments, medications, and partial answers, with no single place holding the full picture of what she was living through. We were losing her to the system itself.

In March 2026, after more than a year of fighting, she had microvascular decompression surgery at Swedish Medical Center in Seattle. The surgery worked. She is completely pain free.

Nomi would not have cured her. But it could have held her story — every symptom, every medication trial, every appointment, every pattern — so she never had to reconstruct it from nothing — not for a new specialist, not for a family member trying to understand, not even for herself on the days when the pain and the fog made her own story feel unreachable. That is what we are building this for.